Man with Celine Dion's rare disease warns her comeback could be dangerous

A erstwhile marathon runner who was diagnosed with the aforesaid information arsenic Celine Dion worries that crowds could beryllium a "trigger" during the singer’s precocious announced comeback.

Jon Kelf, 56, was a five-time marathon runner earlier helium was diagnosed with stiff idiosyncratic syndrome (SPS) successful 2019, SWNS reported. Dion revealed her ain diagnosis successful precocious 2022.

SPS causes progressive musculus stiffness and terrible musculus spasms that tin pb to chronic pain, falls and nonaccomplishment of mobility implicit time, according to UT Southwestern Medical Center.

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"In immoderate cases, spasms are truthful terrible that they tin origin falls, breached bones and dislocated joints," the halfway notes connected its website.

While this uncommon information is not fatal, its symptoms tin dramatically impact a person’s prime of life.

LAS VEGAS, NV - MAY 21: Singer Celine Dion performs onstage during the 2017 Billboard Music Awards astatine T-Mobile Arena connected May 21, 2017 successful Las Vegas, Nevada. (Photo by Ethan Miller/Getty Images) (Ethan Miller/Getty Images)

The illness is often triggered by affectional accent oregon noise, elements Kelf calls "particularly debilitating." He shared with SWNS that helium ne'er expected Dion to execute again.

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 "I was a spot surprised. Especially erstwhile she talked astir the dancing. I couldn’t creation earlier the diagnosis, fto unsocial afterwards," said Kelf, who has nary aesculapian engagement oregon cognition of Dion's lawsuit personally.

"Obviously, she has the resources to get the champion attraction available, but adjacent still, it’s rather remarkable."

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In 2019, the erstwhile technologist started feeling his legs tighten up and stiffen anytime helium was tense oregon tense, but dismissed the unusual sensations until 1 day, helium stood and couldn't move.

Kelf tin present hardly locomotion and has been forced to discontinue his job.

Dion has announced 10 shows successful September and October astatine the 40,000-capacity Paris la Défense Arena, planned astatine three- to four-day intervals. 

The intervals volition beryllium important for Dion to gait herself, remainder and medicate betwixt shows, according to Kelf.

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"Everyone’s different, but I’m inactive surprised," said Kelf, who added that the illness could "limit" the singer.

"It’s challenging to unrecorded with, to accidental the least. You person to rearrange your full life. There are bully and atrocious days."

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While Kelf is hopeful that Dion volition beryllium capable to marque the amusement work, helium warned against underestimating the seriousness of the disorder.

Stiff idiosyncratic syndrome causes stiffness of the limbs and muscles. Kelf tin present hardly locomotion and has been forced to discontinue his job. (Jon Kelf / SWNS)

"I deliberation it could undermine however earnestly radical instrumentality us, different sufferers," helium told SWNS.

While helium views the circuit arsenic affirmative and inspiring, Kelf said helium hopes it volition pb to much enactment for others who are suffering.

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"Otherwise, radical whitethorn look astatine her and think, ‘Why aren’t I doing more?’ which could yet person a antagonistic impact."

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"If I’m retired successful public, radical don’t spot the worst of it," helium added. "It's the aforesaid with her, they lone spot the bully side."

Fox News Digital reached retired to Dion's representatives for comment.